What it’s wish to be a baby medicated with hashish
Meg Hartley, January 15, 2020
(Courtesy of the Turner family)
It is terrible that there are sick children in this world, that someone who is so young could already be associated with adult things like the obligatory daily medicine. Unfortunately, it is a very real situation for many families, and their complications become more apparent when this drug is illegal nationwide. However, due to the extensive nature of the endocannabinoid system (ECS), cannabis can be used to combat many diseases – and many of these diseases can affect people of all ages, not just adults.
We spoke to some families with children who regularly medicate with cannabis to get a picture of what this lifestyle looks like, what challenges they face and how cannabis has changed their lives. We have discovered amazing stories about improvements, innovations, and a couple of families who wish there was a bigger word for "inspiration".
Sophie Ryan, Sehbahn glioma brain tumor
Sophie Ryan was born on October 3rd, 2012 as a perfectly healthy girl. However, it took less than a year for an MRI to diagnose an optic glioma brain tumor that does not usually shrink with chemotherapy. It didn't look good. Then her parents created a Facebook page entitled "Prayers for Sophie" and a friend brought her in touch with Ricki Lake and Abby Epstein, who filmed Weed the People a documentary about the possibility of treating cannabis oil cancer in children.
In a telephone interview with Leafly, Sophie's mother Tracy told us that Sophie had taken her first cannabis medication at the age of 9 months – a drop of highly concentrated CBD and THC oil on her food before she started chemotherapy treatment. Since Sophie was still a baby, they had to pay attention to their manners to assess the dosage. The only side effects they noticed were drowsiness in the beginning and a higher appetite, which is perfect for chemopatients.
After 13 months of chemotherapy and high doses of cannabis oil, Sophie's "non-shrinkable" brain tumor had disappeared by 85 to 90%. Tracy told Leafly that even Sophie's doctor, who was initially skeptical of cannabis, had to admit that cannabis must have helped.
Sophie's cannabis treatment is not only different from chemotherapy, as her parents note. Tracy is not only more expensive, but also: “Chemotherapy makes you very sick, destroys your immune system and causes organ failure. They lose their hair, they get sores all over their bodies and in their mouth … Sophie got chemical burns when she was wearing diapers, and we had to wear gloves so that the chemical acids didn't get on our skin – that's terrible. And then you have cannabis and it does the opposite of all of that. "
Fortunately, Tracy doesn't have much judgment. Working to be a trustworthy voice, making sure she is up to date with the latest research, she brings Sophie to many speeches to prove how healthy she feels despite chemo. (Tracy said Sophie was a natural talent and loved to do these events with rare exceptions.)
After discovering the incredible ways cannabis can cure, Tracy decided to start her own business, CannaKids. They are now selling high quality tinctures and syringes across California, working to expand to Canada and Australia, and launching a nationwide hemp line with 6-9 cannabinoids. Like many others, legalization was associated with significant problems. Tracy said that her company "has barely survived the costs and requirements of legalization." For example, they had to change the name due to laws regarding the marketing of cannabis to children. CKSoul is the new product line and CannaKids continues to operate as a non-commercial resource.
You also founded a foundation called "Saving Sophie" that raised $ 60,000, but Tracy said, "It's like a week's work in a laboratory. It will take you about half a million to get going come. "And the Ryans also started a podcast to raise awareness and collect donations – check here .
Coltyn Turner, Crohn's Disease
Coltyn Turner developed Crohn's disease at the age of 11 after a drowning incident led to a bacterial infection. Over the next three years, he would try various traditional treatments that he and his mother Wendy said had almost killed him. In a telephone interview with Leafly, Coltyn said: "The medicines that I tried [range from] and that do absolutely nothing gave me nosebleeds for 15 minutes, [to] Another chemo-like infusion treatment gave me medically-induced rheumatoid arthritis ( RA) and lupus. "
You read that correctly. Coltyn and his family report that traditional medication has burdened him with two other chronic diseases, each of which is capable of weakening a person on his own. But there is more.
Finally, they tried cannabis. “When I became familiar with cannabis, I was no longer in a wheelchair for the first two weeks. I felt like a normal child again, ”said Coltyn.
And he has evidence of the positive changes. I [went from] 22 centimeters inflamed intestine with skin lesions, with everything you can imagine – inflammation, ulcers, scar tissue, granulation lymphoma – to a normal colon; no active Crohn's disease, only cannabis. So cannabis not only treated the pain that is important, it also took care of what caused the pain. It also helps with RA and Lupus, which I got from [pharmaceuticals]. "
Coltyn is now 19 years old and has been cannabis for five years. And his Crohn is in remission; They report that they hardly ever need to see a doctor these days. He still occasionally gets symptom flares, but can control them by increasing his cannabis dose during this time. They have a good grip on it these days, but they say that there were some challenges early on.
Wendy said the biggest challenge was to dose and make sure Coltyn got the right amount of cannabinoids without getting high. "We constantly ask ourselves:" How are you, how do you feel? "She said." He must be really fed up. "
But Coltyn is not graded. "Yes, I am, but at the same time it is very important, since many patients do not know their dose exactly, especially earlier in their cannabis treatment, and you change them quite often," he said. "When I first moved from Colorado to start cannabis treatment, we kept a diary and wrote down everything I ate that day, how many times I went to the bathroom – if I had chewing gum, we wrote it down. Unfortunately, this is the only way to develop a program for people by trying everything under the sun until you find something that works best for you. "
Wendy reports that there were some learning curves on her way. "Sometimes we mess it up. For example, we now know that we can never give THCV to a Crohn patient. "
Coltyn adds, "What we know about THCV is that it is an appetite suppressant. It's not a good cannabinoid for someone with wasting syndrome. But we didn't find out until I lost 10 pounds. That is the struggle when there is no research or anything. "
As for conventional medicine, Coltyn said: "Fortunately, I was taught at home all my life, but there are children who have problems having medicine at school. Most of the time, they are not even allowed to have 200 or 1,000 There are children with seizures who go to public school and if they need emergency medicine, they have to take their parents to school, pick them up, drive them off campus, manage them and then bring them back. ”
Wendy said that legalization has had a negative impact on this problem. “These newly legalized states are emerging and creating regulatory problems in schools with zero tolerance laws. Coltyn went to school for 38 days and we took him out because we couldn't handle it. There is no viable option for this, not even at school. "
She added that a student is suing his school for this problem and said it was insane that drugs that can kill you if misused are allowed in school, but cannabis is not.
Wendy said that without international trade, medical care can be a challenging task. "Anyone with a health card is a prisoner of that state," she said. "Most of Coltyn's doctors are in Missouri across state borders, and the second time we cross those state borders, Coltyn is illegal. And if he broke his arm or something, I would have to tell them that he was being treated with THC "And I can't give him these drugs for Crohn's disease if he had to stay in the hospital for more than a day because of this broken arm. So, we're going to flare up with his Crohn's disease."
When asked if they are highly judgmental about treating Coltyn with cannabis, they happily report that they don't. Tracy said that it is likely to have a lot to do with being an intimidating mother who is ready to share facts and statistics with doctors and other medical professionals when needed.
And their advocacy for cannabis doesn't stop there. The Coltyn Turner Foundation focuses on researching and raising funds to achieve this. Her first project is a survey of Crohn's patients who use cannabis. The goal is to get solid data on how it works in their systems and can be used as a resource for other patients. "I thought it was important," said Coltyn. "All the time I address doctors and patients who don't know that cannabis works, and the one thing they say is that there is no research."
His mother added that this is not the whole truth: "One of the problems we have in the States is our ego, especially with these doctors who say there is no research just because the research does not that's where the United States comes from, which the DEA and other enforcement agencies have to go through, ”who of course aren't big fans of Schedule I drug trials – an angry circular dilemma. But Coltyn is ready for the challenge.
"If the government doesn't do something right, people have to do it themselves," he said. "I would rather be illegally alive than legally dead."
Meg Hartley is an Alaskan cannabis writer and lawyer who currently lives and loves in Long Beach, California.